Further resources on user involvement
Internet
The Cooperative Governance and Participation development toolkit
The top site for information and resources on a participatory approach
User Involvement in Voluntary Organisations - Shared Learning Group
Links and resources on all aspects of User Involvement
An 'Involve' interactive website that looks at ways to strengthen democracy through participation.
A national advisory Group, funded by the Department of Health, which aims to promote and support active public involvement in the NHS.
Comprehensive overview of consumer approaches to involvement in general
Charity Commission Publications
Charity Commission CC24 - Users on Board: Beneficiaries who become trustees
Charity Commission CC24 Questions and Answers
Recent Advice from the Charity Commission on User Involvement
JRF Publications
Routes and barriers to citizen governance
Making user involvement work: supporting service user networking and knowledge
Increasing user involvement in voluntary organisations
User involvement in the control of voluntary organisations
Involving Particular Groups
Seriously and terminally ill people
NCVO’s Guide to Recruiting and supporting terminally ill trustees
JRF Report: User involvement and the seriously ill
People with Learning Difficulties
About Management Committees
Ref: FA01
Why it is important that people with learning difficulties are in control of their own groups
Ref: FA04
User-led
Ref: FA05
People with Mental Health Problems
Mind's Policy on User involvement
Rethink's Policy on User involvement
Young People
Charity Commission Hosted Round Table – Involving Young People in Governance
Statement from the Commission regarding young people under 18 years old as charity trustees
Young Voices in the Boardroom (An American Perspective – but see above for the legal position in the UK)
Books
Getting Involved
Suzy Croft and Peter Beresford
The original guide to user involvement.
Open Services Project and Joseph Rowntree Foundation. ISBN 0 9517554 1 2
Service User and Carer Participation in Social Work (Transforming Social Work Practice)
Janet Warren
Learning Matters Ltd 2007 ISBN 1844450740
Academic Reports
Lock, M., Begum, N. and Robson, P. (2003) Service Users and Charity Governance, in C. Cornforth (ed) The Governance of Public and Non-Profit Organisations, London: Routledge.
Lock, M., Robson, P. and Howlett, S. (2001) Users: at the centre or the sidelines, in M. Harris and C. Rochester (eds) Voluntary Organisations and Social Policy in Britain: Perspectives on Change and Choice, Basingstoke: Palgrave.
